In 2006, Julian and Sharyn Thompson found out that their son James has Duchenne Muscular Dystrophy (Duchenne). Duchenne is an insidious gender-linked muscle-wasting disease that leaves little boys (and in some cases girls) struggling to walk before they make their teenage years. As there is no cure, Duchenne results in premature death by late teens/early adulthood in 100% of cases. Even though it is a genetic disease, in up to 40% of cases there is no family history and the disease arises by way of a spontaneous mutation at conception.
This means ALL CHILDREN conceived are at risk of being born with Duchenne.
Through James Thompson’s inspiration the Tour Duchenne has raised over $2.5 million which has gone towards research and respite care in the Duchenne community. Funds raised have gone to research at both the Institute of Neuro-muscular Research in Sydney and the National Muscular Dystrophy research Centre in Melbourne. Also respite funding was given to muscular dystrophy associations in New South Wales, Queensland and South Australia to help support the work that they do. As well as raising valuable funds the Tour Duchenne has created awareness nationally for the Duchenne community and helped raised the profile of this insidious disease.
The Tour Duchenne is continuing to assist Duchenne families throughout Australia by providing gap funding for respite, services and equipment as well as the development of a fully serviced respite home "James House" to be built on the Gold Coast in Queensland.
With 6 successful Tour Duchenne Bike rides being held, we are excited to continue our journey and ride a “Lap of the Map” of Tasmania.
The Tour Duchenne has a simple mission: To assist Duchenne Muscular Dystrophy boys and girls and their families with services, facilities and respite care through raising maximum funds and awareness nationally.
Tour Duchenne is the way in which we achieve this vision!